a dragon mom’s words

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An especially warm welcome to all you who’s lives have been altered by a child’s diagnosis - I see you, you are not alone!

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Pregnant After Rare: Week 30

“Congratulations!” “Thanks,” I respond, with a slightly strained smile. I am excited, right? There must be excitement, mixed in with all...

Time travel in the MRI suite

Returning to the MRI suite today was like walking into a memory. Three years ago and just to my left, I was sitting on a hospital bed...

Family Planning

Opaque, a future like dirt inert but teaming with potential I squint as if I could see as if all the plotting could control what creation...

Wheelchair Fitting Day

What is here today? Gratitude for the professionals that are guiding us while also respecting our wishes. Joy with all the trim options...

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