Helpful Resources

a monthly column on resilience - written and curated - by yours truly :) https://knowrare.com/blog-v2/tag/Rare+Resiliency

https://knowrare.com/latest-p1/books-for-rare-disease Since Alden’s diagnosis I have been consuming books at an personally unprecedented rate. Part distraction and part self-help, I have found reading the experiences and wisdom of others to be immeasurably important as I find strength to survive a

Excited to share new blog post about the wonderful books we have found through our journey so far. https://knowrare.com/latest-p1/booksforfamilies https://knowrare.com/latest-p1/booksforfamilies