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a dragon mom’s words


Welcome.


An especially warm welcome to all you who’s lives have been altered by a child’s diagnosis - I see you, you are not alone! 


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Wheelchair Fitting Day

What is here today? Gratitude for the professionals that are guiding us while also respecting our wishes. Joy with all the trim options...

Alden Update: 2 years old

Alden continues to show slow, but steady, advances. In gross motor skills we have seen increasing trunk stability leading to sitting with...

West Bay

It is the last day of fall and definitely winter. The silence reveals the immense shifting, the vacillating energy under this copper...

Discovering The New Playground

We are rounding a turn when my daughter asks, “Will Alden talk when he turns one?” “No honey.” “Why?” “He’ll still be just a baby.” Eyes...

Your Lineage

Following ancient patterns our minds traced cycles around the moon to the moment that led to the creation of you Emerging from a mosaic...

Diastole

phase of the heartbeat when the heart muscle relaxes and allows the chambers to fill Today I offer an appreciation to the lub-dub...

Main Street

Checking for atypical movement I peer through the window of the jogging stroller to see skinny little legs bouncing with each bump as we...

The Great Gamble

Some time ago, we rolled and rejoiced, together in the rush. Laughing between wrinkled sheets, we knew our future to be flush. Now, how...

A wet hammock

Simple twine reshapes the dense spring air into diamonds around and under us Held by this cradle of rope of tall trees of a heavy,...

Those Words

Brain Malformation Genetic Screening, upside down and bold, those words creeping across the top of the doctor’s clipboard do much more...

If you have never been

then please do not welcome us to Holland for you know nothing of the turbulence as we touch down unpleasantly surprised, nauseous and...

Yes, lament

As from any blue horizon silently growing waves approaching sharpening, then foaming as they fold on and into themselves submit yourself...

Practicing Profound

Profoundly disabled. Profound, on that we can agree. And there it is, the difference, the difference between you and me. Built profoundly...

Failure to Thrive

For a while now, I have noticed the inky dots that doctors track flat lining. Despite all the mashing and blending straining and scooping...

Every Three Hours

With a grin, he locks eyes and utters, in quick succession, little coughs; clearing his throat perhaps, requesting dinner, thrilled....

Burn

With each moment, I might be a phoenix or smoldering ash as I cycle through my rage my sorrow, love, regret my sweat Mind shape-shifting...

Non-Verbal

My son abides in time with trees slowly, perhaps seasonally stretching to grasp for light patient with his swaying trunk sluggish fingers...

I see you, Dragon Mom

Today I see you with only love commend you for cherishing what you can choosing to focus on the little wins on self care the present...

Alden Update: 10 Months

Alden is a joyous and social young boy. He loves his sister, lighting up with a smile and squeal when she engages him. He is curious...

 

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