top of page
a dragon mom’s words
Welcome.
An especially warm welcome to all you who’s lives have been altered by a child’s diagnosis - I see you, you are not alone!
Please subscribe to stay connected. Share with others who might engage with our story or my words.
Home: Welcome
Search
Alden's 5th Birthday
Alden, using his talker, to tell us how old he is today. It is Alden’s Birthday today. When I ask him how old he is, he smiles silently...
207 views
2 comments
Pregnant After Rare: Week 30
“Congratulations!” “Thanks,” I respond, with a slightly strained smile. I am excited, right? There must be excitement, mixed in with all...
172 views
0 comments
Time travel in the MRI suite
Returning to the MRI suite today was like walking into a memory. Three years ago and just to my left, I was sitting on a hospital bed...
498 views
0 comments
Family Planning
Opaque, a future like dirt inert but teaming with potential I squint as if I could see as if all the plotting could control what creation...
289 views
1 comment
Wheelchair Fitting Day
What is here today? Gratitude for the professionals that are guiding us while also respecting our wishes. Joy with all the trim options...
295 views
0 comments
84 views
0 comments
Alden Update: 2 years old
Alden continues to show slow, but steady, advances. In gross motor skills we have seen increasing trunk stability leading to sitting with...
188 views
0 comments
West Bay
It is the last day of fall and definitely winter. The calm reveals the immense shifting, the vacillating energy under this copper green...
253 views
0 comments
Discovering The New Playground
We are rounding a turn when my daughter asks, “Will Alden talk when he turns one?” “No honey.” “Why?” “He’ll still be just a baby.” Eyes...
224 views
0 comments
Your Lineage
Following ancient patterns our minds traced cycles around the moon to the moment that led to the creation of you Emerging from a mosaic...
353 views
2 comments
Diastole
phase of the heartbeat when the heart muscle relaxes and allows the chambers to fill Today I offer an appreciation to the lub-dub...
199 views
0 comments
Main Street
Checking for atypical movement I peer through the window of the jogging stroller to see skinny little legs bouncing with each bump as we...
309 views
1 comment
The Great Gamble
Some time ago, we rolled and rejoiced, together in the rush. Laughing between wrinkled sheets, we knew our future to be flush. Now, how...
436 views
0 comments
A wet hammock
Simple twine reshapes the dense spring air into diamonds around and under us Held by this cradle of rope of tall trees of a heavy,...
169 views
1 comment
Those Words
Brain Malformation Genetic Screening, upside down and bold, those words creeping across the top of the doctor’s clipboard do much more...
574 views
1 comment
If you have never been
then please do not welcome us to Holland for you know nothing of the turbulence as we touch down unpleasantly surprised, nauseous and...
311 views
1 comment
Yes, lament
As from any blue horizon silently growing waves approaching sharpening, then foaming as they fold on and into themselves submit yourself...
459 views
0 comments
Practicing Profound
Profoundly disabled. Profound, on that we can agree. And there it is, the difference, the difference between you and me. Built profoundly...
344 views
0 comments
Failure to Thrive
For a while now, I have noticed the inky dots that doctors track flat lining. Despite all the mashing and blending straining and scooping...
451 views
0 comments
Every Three Hours
With a grin, he locks eyes and utters, in quick succession, little coughs; clearing his throat perhaps, requesting dinner, thrilled....
318 views
0 comments
Home: Blog2
Contact
bottom of page