Returning to the MRI suite today was like walking into a memory. Three years ago and just to my left, I was sitting on a hospital bed...

Opaque, a future like dirt inert but teaming with potential I squint as if I could see as if all the plotting could control what creation...

What is here today? Gratitude for the professionals that are guiding us while also respecting our wishes. Joy with all the trim options...

Alden continues to show slow, but steady, advances. In gross motor skills we have seen increasing trunk stability leading to sitting with...

It is the last day of fall and definitely winter. The calm reveals the immense shifting, the vacillating energy under this copper green...

We are rounding a turn when my daughter asks, “Will Alden talk when he turns one?” “No honey.” “Why?” “He’ll still be just a baby.” Eyes...

Following ancient patterns our minds traced cycles around the moon to the moment that led to the creation of you Emerging from a mosaic...

phase of the heartbeat when the heart muscle relaxes and allows the chambers to fill Today I offer an appreciation to the lub-dub...

Checking for atypical movement I peer through the window of the jogging stroller to see skinny little legs bouncing with each bump as we...

Some time ago, we rolled and rejoiced, together in the rush. Laughing between wrinkled sheets, we knew our future to be flush. Now, how...

Simple twine reshapes the dense spring air into diamonds around and under us Held by this cradle of rope of tall trees of a heavy,...

Brain Malformation Genetic Screening, upside down and bold, those words creeping across the top of the doctor’s clipboard do much more...

then please do not welcome us to Holland for you know nothing of the turbulence as we touch down unpleasantly surprised, nauseous and...

As from any blue horizon silently growing waves approaching sharpening, then foaming as they fold on and into themselves submit yourself...

Profoundly disabled. Profound, on that we can agree. And there it is, the difference, the difference between you and me. Built profoundly...

For a while now, I have noticed the inky dots that doctors track flat lining. Despite all the mashing and blending straining and scooping...

With a grin, he locks eyes and utters, in quick succession, little coughs; clearing his throat perhaps, requesting dinner, thrilled....

With each moment, I might be a phoenix or smoldering ash as I cycle through my rage my sorrow, love, regret my sweat Mind shape-shifting...

My son abides in time with trees slowly, perhaps seasonally stretching to grasp for light patient with his swaying trunk sluggish fingers...